Showing posts with label challenges. Show all posts
Showing posts with label challenges. Show all posts

Thursday, September 30

Urgh!! Cerebral Palsy can take a long run and jump!

 





Today is one of those days when I really should be feeling great. I have a great place to live in at the moment. I have a fantastic family that are with me. Yet Cerebral palsy is completely making me feel Urgh! Today I am feeling wiped out. I don’t know why! But I am pushing forward

Maybe it is because of the weather. The weather really has a big connection to cerebral palsy in my view and it's a common factor.

Do you have similar feelings about Cerebral Palsy?

Winter is a “Debbie Downer” for me and I have really forgotten to take the multivitamins that I should take to boost my energy. So that cerebral palsy has less of a hold on me. I mention it in my post, Winter Blues. All though I have moved now. Some things are still triggering me to have down days although there are fewer. Today is one of those days where I m would quite happily stay in bed and sleep the whole day through. I think also it has been because of the move that I haven’t really written much and I know that it is because I have moved home just before Christmas.

More posts coming soon!

I am planning more posts right now about cerebral palsy and life in general with the condition. With all the changes that happened in 2020 are still happening now in 2021 I’m having to alter my own routine and balance family life as well as fitting time in for writing posts and everything else to fit around life.

I wrote posts about what went on throughout the year in the following posts How are you dealing in these strange times and Keeping your distance to keep safe. And the most recent horrific change that occurred this week the 6th Jan 2021 that I tied in with how we as people should be treated. That post is Are you looking forward or looking back with cerebral palsy.

Yeah, this is a short diary-like post!

But you know what now and then there will be more of these types of posts because I have realised that lots of people love these types of posts as they are more like a day to day way of living with cerebral palsy. While also writing and showing you what I have done or are in the process of doing something the moving

love and peace

Ok! What now? Things are changing yet again Urgh!

 Today, I have no makeup on, I have got tinted eyebrows and tinted eyelashes because I find that I can't do those easily. I get those done professionally, once a month.





Since COVID has slowed with everything and started to open things up a bit more recently. It's made a lot of things easier to do, especially as a disabled person with cerebral palsy, and the ability, or shall I say, lack of ability to do something for themselves, very much. because it's the way things are done. I, still haven't completely done, what everyone does, which is their legs or underarms yet, because I have not had time to do it. And because it's not been easy to get a place to do them because of my disability. I can't wait to have that back. I also have my nails done. with acrylic tips with infills.




And the reason I wanted to do that is that I'm finding if I'm like that. I have some kind of control over what my body has and does. it makes me more like me to be free, as a human.


I've been talking about COVID before. The fact that things were not able to be done. As for, for people like us with the disability and those who choose not to, but those who can do it on their own.

I wish it was more readily available for people like myself, to be able to have it as a proper way of life, and less of a treat. It's not just a choice, it's something we must have done because nobody doesn’t want to be looking their best.

I mean, at the moment. I'm not completely my best I'm my hair is a bit of a mess as you see in the photo above.

I've got no makeup on as my skin has been a bit iffy and I haven't felt right, in myself, to do it. I mentioned in my last video that I had a tooth playing up so I went to the dentist and had that fixed now. I'm feeling a lot better, and it's fantastic weather at the moment and I'm loving the weather.

However, my skin hates it, it will not let any makeup stay on my skin, I have to be incredibly careful with it. I can only wear a moisturiser or a light BB cream in the summer, with a little bit of lipstick because I sweat everywhere on my face and I find it very difficult to have anything to stay on my face even with a primer.

I mean, I love my primers, and the primers I'm using right now are the ones from. I haven't got them with at the moment. Yeah, that it's the Maybelline ones I think if I remember rightly or the Revlon ones I'm using at the moment. Um, but I am adoring the Maybelline Baby cream, which is great. isn't thin and runny like some are great just to dab on and then using the kabuki brush. It's, you can make it smooth across your space, and it has SPF in it. The same with the Maybelline foundation liquid foundation which is good too.

Everyone is different, and I would love to know what everyone else thinks about this because I'm finding makeup hot and difficult to wear.

Although a touch of lipstick, goes a long way, and that is something that one of my heroes, or shall I say, heroines did and that's Marilyn. Marilyn Monroe. Because she wore bright red lipsticks quite often and had blonde hair. I've been researching a little bit about her, she said that her hair was called pillowcase blonde. For her, which is an interesting way of describing a type of blonde. So, although I haven't got that type of blonde. I wouldn't go that blonde and probably couldn't either.

I have got it curly like her, although it's not tidy. Although, because it's too hot for me and like many, I'm dealing with frizzy hair. and it's gone crazy with this weather, again, which I'm loving otherwise, and I felt a lot better since my little minute video that I did on my phone feeling absolutely rubbish and then having to have a feeling replaced.

I'm back from now. I will be trying to do more, but, again, because my moods, often change because of my disability on a to day basis it may be not as consistent.

I have said this in a lot of my posts as well. Because of that, I have a lot of different mood swings, and it makes it very difficult to have some kind of consistency. I am trying very very hard at the moment.

The one thing I'm loving, that is helping me is my volunteering with Galaxie global radio, and I'll put my link in for that as well. In my post, as well as on, the video so it's my thing that I do that for two shows a week. since originally posting this as a video the station has now been closed.



It gives me a bit of stability in a routine of sorts, you know, as well as sort of dealing with my skin.
When the kids are at school, I find it a lot easier to do things because they can not be in it and not disturb me.

Whereas, at the moment, or, at times when I have gone quiet is possible because I have had them at home. They've wanted my attention so I'd rather give them my attention than give the whole of my attention to a video, or whatever else I was doing.



Because it's not fair on them. to get them out of their routine and not give them anything. So, I've been talking about that to them and saying you know as long as you know they don't mind as long as I've mentioned it met up a minute. They don't mind being mentioned but not being put in. So, that's fine, I'm trying to hopefully get more routine going this week, and I'm a bit busy tomorrow, but I will try and put a video out maybe put an Instagram post out tonight. I'm out and about I should have really should have done what I was doing outside getting some stuff for the house. Because I've enjoyed what I was doing and I'll put that in a different post as well because that's something I've wanted to talk about too.

For now, I'm going to say love you and leave you and I'll see you next week because I will be back. Although it's going to be a little bit difficult during the holidays, I will try my best.

But if not, I will do the best I can. So I'm going to leave love you and leave you for now and I'll see you next time

Challenges Ahead Part 2

 


You are in your late 20s plodding along quite nicely or maybe even in your 30s already and found things more challenging. It's ok happens to everyone.

You know that we use 3x as much energy compared to the average person so our bodies wear out quicker than able-bodied people. I mention it in my posts live with Diplegic Mixed Cerebral Palsy and Common questions for me. I’m here to tell you what is next as I go through each decade.

What’s next life has thrown you a curveball and you are beginning to see the signs that you need to slow down only you can’t. You’ve got loads going on.
Life, work, family, and yet you have the nagging feeling that you really should be doing physio when you’re not. First, you notice that a certain muscle is tight or some other symptom you notice. Maybe you’re tired more often. That’s ok it will be more evident the older you are. Maybe the pain is just niggling. Perhaps it comes and goes monthly or seasonal. It's ok it's normal.

Work and Life
You know what you are doing from day to day work-wise. Perhaps you married or in a stable relationship or even on your own but have a pet. Maybe you have a carer part-time.



Physiotherapy
It's ok but have you thought about how to resolve the issues of pain. Have you thought about the physio sessions you had as a child? Have you thought about getting your doctor to refer you to physio as an adult?

Or can you self refer yourself to a physiotherapist? Now is the opportune time to do this. You can get an idea of how much physio you need to do and what exercises. This is really important because by the time you get to get going to maintain your agility now. This includes muscle tone, movement the ability to be as normal as possible. Yeah, I know you think that other parts of your life are important and yes they are but nothing is if you don’t look after your body and your own abilities.



I get it I totally do and I have been in situations where I have been bed-bound because I have been stupid and not looked after my own body and I have realised that I should have done the physio as I went along through the years. I didn’t and am now paying the price for my own mistakes. This is also why I am writing the blog.

A New Season ahead

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