This year has certainly thrown a curveball to everyone with the virus being part of it. which I have mentioned in various posts such as How are you doing in these strange times
You know what though there are things that want to throw you some kind of lesson. So learning from these situations is often difficult but that's ok. I've talked about these in posts such as Urgh The feeling but you know what even I'm learning to be patient. Being patient is a very difficult thing if you are used to almost instant gratification yet it is worth learning as a skill.
The future had also been put on hold because of what the government had decided to do while beginning to open up the country again. And this also means that our own future has been put on hold and it is kind of scary not knowing what is going to happen next but it is not totally in my hands at the moment. At this point, we have to wait and see if there is a chance we can have what we want or do we have to change tact for the future. These are the curved balls that are definitely sent to try us but during a difficult time. on top of the general day to day challenges that my cerebral palsy. however, I am writing a daily blog of my moods and that is
which I will be writing using my phone when I feel like it as it seems to encourage me to write on here too which is a positive step on the whole.
This is a short post as I have not been very well mentally and there have been a few days where i8 have just wanted to curl up like a ball which is why I have started a new one
It is the international cerebral palsy month this month and here in the UK, there are roughly 1 in every 400 people who have this condition, I included. There are roughly 30,000 children with this condition and although the actual condition doesn’t actually change with age the effects of the condition do.
What?
I have written different types of posts on this condition as I actually have it. My aim is to ensure that the condition is recognised properly and we get the help we need, continually throughout our lives as adults. Not just as children learning to live our lives as we exhaust and wear out quicker than the average person.
Where?
Throughout my own life, there are things that I should have learned to do. But because of whatever reason I did not. This means that there are things that I wish had learned and am struggling with now. I mention these things in the following posts Life with mixed cerebral palsy and common questions for me because I have written these posts early on I won’t go on about it too much because really what I want to be talking about is the positive side of the condition and the how normal we are actually are, despite our differences.
When?
I also want to prove that even though we do have a disability we also suffer the same feelings as anyone else with depression or any other mental illness. This is shown in my posts Urgh! The feeling and Urgh Again just to name a couple. We can also be just as upbeat as anyone else. We also have the same challenges as anyone else in these strange times what with the pandemic which was mentioned in How are you coping in these strange times. As well as dealing with the stress of moving home which is is mentioned in Thank goodness you have a moving date.
Why now?
This month I want to keep the interest going to prove that we need to be recognised as normal people. One of the most important things that are being missed is that we are being ignored for needing extra help after the change from being a child to being an adult. And the Facebook group Cerebral Palsy Adult Advice UK with the charity Adult CP Hub have a petition asking for the continuation of help throughout our lives not just at the beginning as a child teaching us how to do things and then leaving us to it. Which at this point although we may know what to do we may need help doing it. The petition is Care Parity for adults with Cerebral Palsy. I urge you to sign this as a matter of urgency because any adult with the condition will need help despiteour wish for normality while dealing with medical situations that are different to a lot of other people.
My Reasons!
I’m wanting to do this because a lot of us don’t have a voice and I am one of the lucky ones who can speak and give a voice to those who don’t. This goes for every disabled person no matter what disability they have.
Because!!
I realise that not everyone is not as blindsided by the way that they live but the life of a person with cerebral palsy is just as valuable as those who don’t have a disability no matter what was thought of in the past because what matters now is the future.
And Why?
In my lifetime I wish to be able to say that cerebral palsy was acknowledged for adults, not just the children who have it. And for all the help we need is given rather than having to battle for every little thing.
What can youdo?
Please think about the people who have a disability and may need your help in whatever way. This includes signing the petition Care Parity for adults with Cerebral Palsy and learn more about the condition so that you can perhaps help that person who needs your help rather than give them the help that you think they need.
Because they know what they need better than any other person.
I've been in this house, seven months now. I love it. I am used to being able to walk around a lot more easily and do more things for myself. It's so much b8igger than my original home But I would be silly enough on Friday to slip on a wet floor. That's what anyone can do.
So at the moment, I've got a top bigger top lip than I would normally have. I love it, but I wouldn't go down the operation route for it, I don't like injections or anything because it can go wrong that way unless it's done professionally.
Anyway, I have been quiet because of things going on around me, and I've been very worried about things going on as well. And life has taken over. Unfortunately, which is not what I wanted to do.
But I think in times of healing. Everything else has to go out the window, and it doesn't matter what you think is going on in your head or personally need to be able to do it quickly, or for as short long a period as you need. So if I do go quiet, it was because I'm going through a state of not being brilliant, and I'm just wanting to get on with getting things organised on one going life-ise and making myself feel a bit better.
Today, I managed to put a bit of primer on my face. Maybelline Baby Skin Pore Eraser is my favourite. It's so like the benefit one, but much cheaper. I love it, it stops me from feeling sweaty.
So I've realised, I'm just gonna keep using that, even if I don't wear makeup every day, I might just wear the primer to start with, because although I love makeup. I haven't worn it for a long time. I’ve not felt as if I've been well enough, mentally to do it, because of the way. I have been stressed out panicked about other little things that are not worth worrying about.
But they still make me worry about them, but also things in the family have been going on so I've been concentrating on those two. I know that I should probably be writing the video and everything else, a lot more emotion than I have been. I will try, but life gets in the way as I had said to you before.
I wanted to do it this way so that I didn't have to make it such a stressful, feeling for myself this Sunday, via the phone. And yes, to everyone else in the house, I'll probably look like a complete idiot talking to myself over the phone. But actually, this is a speedier way of me writing everything down. Doing anything else, because I can edit what I said. For the posts that I do for my blog. And I can keep it real on the audio and video because that's who I am not some kind of portrayed as someone else.
After all, this is the other thing I've been thinking about recently, and it's being true to yourself and wondering what is true to you and what do others perceive of you, or expect of you, because for a very long time and I mean a very long time. I have been. Although, trying to be me. I've always been what everyone else expected doesn't need to be. So, it's nothing, not been easy and I'm beginning to go through that process of thinking, Okay, it's time for me to be me and find the level of exception, except citations that I want, or anyone else wants because no one else matters in that respect because
it's my life, and, and, yeah, it's not what everyone else expects me to do.
But it's what I've wanted to do. I've noticed certain things that I've thought in their dreams that I've thought about a long long long time ago. They're slowly coming to fruition, you know, there have been things that have been stopping the flourishing of the plans because of other people's meddling or life generally getting in a way, because people think they know you better than yourself, which, which isn't the truth. After all, I know you, you know yourself.
If you can't get any feelings for yourself to accept and be who you should be, then you're you'll always be the one, what everyone else expects you to be what they think. Being honest to yourself and truthful to yourself is the most important thing because I'm slowly beginning to learn that people who I, thought was very, what I thought were important, are not very important at all.
After all, they don't understand my situation properly. I have been worried about that. But I'm gonna live my own life when I wanted to because it's important for me to do it the way I wanted. Not what everyone else expects.
I have been pretty lucky is what I've got and done and because a path from cerebral palsy is not expected to have a family, not expected to get married or have children. They are expected to be cared for by their parents or expected as I say to be put in a home, or something else. In my case that isn't because I am married, I'm happily married and have a family, and I'm very lucky and there are lots of us who have got so cosy who do have this chart, and have this in my blog, I have talked about ages. And what disability does throughout the ages! Challenges ahead part one and Challenges ahead part 2
But this is just a general to chat about today. Because of the way things have been this last week or two what I'm suspecting is the beginning of the hormone situation where things are changing because but we'll wait and see what's going on with that as well because it can take ages to find out what's going on.
You know what, though it doesn't matter. I'm happy, I'm safe, I know where I am, I know who I'm with. I also know that it's going to be okay in the future. Although it might seem to be boring or stressful waiting for the future or day by day, I know it's going to be okay. I know that it's going to be fine at times but the disability of realising has problems in some respect. Anyway, so it shouldn't be a problem.
Because you wonder, people who have lots of money are happy or the because they haven't got everything else that they want people who have minimal money are very happy because they got all the people that they want, but may want some actual stuff but that they not necessarily can afford right now, it doesn't mean they can't have it, it can be a gold small goal to have in the future, or whatever. I'm gonna leave this one because it's I'm rambling again, I'm not making too many points in this post.
So I need to split them up, I think, talking about each topic at a time.
