Life With Sweetestmoondust
Life as a disabled person with cerebral palsy
Sunday, February 26
In Limbo! Waiting for the future
Sunday, January 1
The new year ahead!
As we enter the new year, we have the opportunity to make it our best one yet. I'm sure we all have our own personal goals, but let's also strive to make this year a positive one for everyone.
Let's be kind to one another, show compassion and understanding, and be supportive of our friends and family. Let's also strive to be creative and come up with new ideas and solutions to any problems that arise. I'm sure this year will be filled with a lot of challenges, but if we approach them with optimism and a can-do attitude, then together we can make this year memorable for all the right reasons.
Wishing everyone a safe and happy new year!
My goals for the year ahead are simple.
To move to the right home.
To write more posts.
To write more poems
To write some short stories
To be back on air with your hits digital
What are your dreams?
My dreams for the year are to continue to learn and grow as a person, to stay healthy and active, to develop meaningful relationships with friends and family, to pursue my passions and goals, to give back to my community, and to be open to new experiences and opportunities.
What are your goals?
There are so many things that could be goals or dreams that you can have and they are not constricted to what the disability that you have.
Ok so the conventional ideas don't always work because of how cerebral palsy can affect the body. But that shouldn't matter because you as a person matter more than the disability. You are a person first and foremost. Who happens to have a disability.
There are so many different things that I want to do and plan that I am doing them on a weekly basis rather than long term because at the moment that is out of the question. These include:
finish packing up the house
Start getting healthier
Start being more proactive
Unpack at the new house
Get healthier food
And yes these coincide with my goals so be it. These are my personal ones as those are what I have wanted for a long time. But for various reasons I have not been able to complete these for a very long time.
Putting things forward
Putting things forward means to me making plans and goals shorter than a lot of people would expect as I can't plan as far ahead as I would like because of cerebral palsy. So my plans go mainly week by week at the moment. Although I have dreams that can be longer term but I don't see each step. Which I'm just beginning to learn at my age.
It doesn't matter what the dream is!
This is what I think is important the most because as I said in the earlier paragraphs it doesn't matter what your goals and dreams are. No one is the same and shouldn't have the same dreams as everyone is different.
It's the new year and there are new things to experience and learn from each day. And that's the most important thing to realise.
So there are positive and negative energies that happen daily. And you are stronger than you think and can do whatever you want. No matter what you have as a disability.
Saturday, December 24
When everyone else's dream is not your own
It can be difficult when your dreams don't match up with those of your peers or the people around you. It's important to remember that it's okay to be different and to strive for something that is uniquely yours.
Don't be afraid to take the road less travelled and to follow your own path. You may find that it leads you to a place that is even more amazing than you ever imagined.
So what is stopping you?
The biggest thing stopping me is feeling overwhelmed by the task at hand. I'm trying to break it down into smaller steps that I can focus on one at a time, so that I can stay motivated and make progress.
And this has been most prevalent with the move that is coming up. Which is why I have been mentally exhausted and unable to write or even record my podcast when I know that I should.
But I thought while in a bit of nomansland regarding it I thought what the heck. And thought that knowing and accepting that my dreams are different to everyone else would make a good post.
Realising that my dreams are different.
In my last post a longer wait than I thought! I mentioned the situation and what's happening so I won't mention it again.
But realising that my dream is not the same as everyone else is ok.
There are people who have disabilities such as mine, cerebral palsy, and are able to get the dreams that most people aspire to but I never aspired to what was expected of me by my peers.
Because of the uncertainty of what cerebral palsy does to the body as you get older. Each case and person is different. It is also not very well documented about the adults who have cerebral palsy as it is considered a childhood disability.
Which is why I am here to show people how the condition affects people on a personal level as I age. I have written previously about what happens in a broad sense in the seasons and how they affect the body with cerebral palsy. And its series.
There is so much more!
There is so much more because everyone has a reason to be on this planet.
I think I know that my reason is to be a voice for those who don't. And to help those who have family with the condition. But they feel that they don't understand what the condition is and how it affects us from a personal view.
And that's part of my dream to be that voice and bridge between.
So although it is a quiet and stagnant time. Along with personal feelings of inadequacy and depression because of the situation I really wanted to write this post and be positive for the future.
For the future?
Well this at the moment is completely uncertain. And I can't plan ahead too much. That is doing my head in to a degree because I can't. Then again I know it is a lesson that I need to learn. So I am taking each day as it comes.
Is that there will be some sort of stability after the holidays and that the home that I have will be the one. but if not then it's ok! Because nothing is truly final.
So what is next?
My aim is to continue writing about what is happening throughout this period. And beyond because that is my dream.
Sunday, December 18
A longer wait than I thought!
- General anxiety disorder.
- Clinical depression.
- Panic attacks.
- Bone damage.
- Post impairment syndrome.
- Bone disfigurement.
- Bone disfigurement
- Post impairment syndrome.
Sunday, October 23
More of the same craziness - with moving again!
Things are a bit difficult at the minute. I'm writing this because of how things are. I'm thinking things through slowly. I've struggled with what's going on recently. We've got a date to move. And It's made it harder to think straight about anything.
We are doing the best we can at the moment as a family, but we're not doing brilliantly. I've wanted to write. I haven't bothered because I've not felt like it. Doing it by audio is the only way I think I'm going to be able to do it for a while and just everything through to make my blog post for now.
Because of the way, the way messes are at the moment, with getting ready for the move. Which is possibly at the end of November. I'm looking to get things ready but it's not brilliant. I felt so low with my cerebral palsy and frustrated because I couldn't do things. Which has contributed to my moods and lack of energy to think or even things I love.
Other people are not being as helpful as they could be. So yes, it could be better. It's difficult to do anything else because of the way things are. I want to make things easily doable for me at the moment. Things like having to think about how I'm writing everything through.
Hopefully, when things are confirmed, I'll be able to do more writing for my blog. So as I have said, I'm using Instagram, having fun with that and trying to be positive. I am waiting for what's out of my control because of the changes with cerebral palsy, along with the things that are going on for the move.
In Limbo! Waiting for the future
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