Showing posts with label month. Show all posts
Showing posts with label month. Show all posts

Sunday, December 5

December and what it has in store for me?

It's the final month of the year. Quiet often it's a crazy one, getting ready for Christmas.

This is the final month of a bit of space before the year of transition yet again. This year has been amazing in so many different ways.

There has been some problems with the world. What with the pandemic and the way it's still effecting the world in so many ways. 

A lot of things however going, back to normal, as I have mentioned in many of my other posts such as When change is coming and Moving on

Yet recently my brain has decided to almost shut down. I think that's because there's been so much going on that I haven't been able to really deal with things on a daily basis. And so my brain was in so much a disarray.

I have had to plan so much ahead for the future, because things are still up in the air despite being safe for now. I wish to be able just live from day to day rather than have to plan so much ahead. And that is something that I needed because there's only something's that I can plan, but not everything.

What do I think December has for me.

I am hoping that this month can be be a semi restful month with good memories for me and my family. As well as Christmas presents and time with outside members of the family that I don't often see throughout the year.

What do I want from December.

I really want this month just to be a peace and quiet so that I can just live from day to day because of my disability. And get ready for the next year and the future ahead.

What I don't want from December!

What I don't want is a month of stress and anxiety before the new year ahead. So I can manage everything going on in the new 


Thursday, September 30

A Special month: Cerebral palsy month! What it really means!!


1st -31st March

It is the international cerebral palsy month this month and here in the UK, there are roughly 1 in every 400 people who have this condition, I included. There are roughly 30,000 children with this condition and although the actual condition doesn’t actually change with age the effects of the condition do.

I have written different types of posts on this condition as I actually have it. My aim is to ensure that the condition is recognised properly and we get the help we need, continually throughout our lives as adults. Not just as children learning to live our lives as we exhaust and wear out quicker than the average person.

Throughout my own life, there are things that I should have learned to do. But because of whatever reason I did not. This means that there are things that I wish had learned and am struggling with now. I mention these things in the following posts Life with mixed cerebral palsy and common questions for me because I have written these posts early on I won’t go on about it too much because really what I want to be talking about is the positive side of the condition and the how normal we are actually are, despite our differences.


I also want to prove that even though we do have a disability we also suffer the same feelings as anyone else with depression or any other mental illness. This is shown in my posts Urgh! The feeling and Urgh Again just to name a couple. We can also be just as upbeat as anyone else. We also have the same challenges as anyone else in these strange times what with the pandemic which was mentioned in How are you coping in these strange times. As well as dealing with the stress of moving home which is is mentioned in Thank goodness you have a moving date.

Why now?

This month I want to keep the interest going to prove that we need to be recognised as normal people. One of the most important things that are being missed is that we are being ignored for needing extra help after the change from being a child to being an adult. And the Facebook group Cerebral Palsy Adult Advice UK with the charity Adult CP Hub have a petition asking for the continuation of help throughout our lives not just at the beginning as a child teaching us how to do things and then leaving us to it. Which at this point although we may know what to do we may need help doing it. The petition is Care Parity for adults with Cerebral Palsy. I urge you to sign this as a matter of urgency because any adult with the condition will need help despite our wish for normality while dealing with medical situations that are different to a lot of other people.

My Reasons!
I’m wanting to do this because a lot of us don’t have a voice and I am one of the lucky ones who can speak and give a voice to those who don’t. This goes for every disabled person no matter what disability they have.
I realise that not everyone is not as blindsided by the way that they live but the life of a person with cerebral palsy is just as valuable as those who don’t have a disability no matter what was thought of in the past because what matters now is the future.

And Why?
In my lifetime I wish to be able to say that cerebral palsy was acknowledged for adults, not just the children who have it. And for all the help we need is given rather than having to battle for every little thing.

What can you do?
Please think about the people who have a disability and may need your help in whatever way. This includes signing the petition Care Parity for adults with Cerebral Palsy and learn more about the condition so that you can perhaps help that person who needs your help rather than give them the help that you think they need.
Because they know what they need better than any other person.

A New Season ahead

Welcome to a new season of Life with Sweetestmoondust. And sorry for being away for such a long time. There has been so much going on for ...