Showing posts with label moving. Show all posts
Showing posts with label moving. Show all posts

Monday, May 29

Moving forward with cerebral palsy




Cerebral palsy is a neurological disorder that affects movement, muscle tone, and posture. Living with cerebral palsy can present challenges, but with the right mindset and support, it is possible to move forward and live a fulfilling life.




One of the first steps in moving forward with cerebral palsy is to develop a positive mindset. This means focusing on what you can do, rather than what you can’t. It’s important to remember that everyone has limitations, and that having cerebral palsy does not define who you are as a person. By focusing on your strengths and abilities, you can build self-confidence and a sense of purpose.


For me this is the blog and ability to talk about my conditions. Both cerebral palsy and endometriosis. From a personal point of view. In order to educate others.


Another important step is to build a support network. This can include family, friends, healthcare providers, and community organisations. By connecting with others who understand your challenges and can offer support and encouragement, you can build resilience and overcome obstacles. I was always taught "there's no such word as can't"


Physical therapy and assistive devices can also be helpful in managing the symptoms of cerebral palsy. Physical therapy can help improve mobility and muscle strength, while assistive devices such as braces, walkers, and wheelchairs can help with mobility and daily living activities. It’s important to work with healthcare providers to find the right treatment plan for your individual needs.




Education and employment opportunities can also play a key role in moving forward with cerebral palsy. There is a lot more to do in this section as it's not always considered as an adult condition.


Pursuing education and career goals can provide a sense of purpose and fulfilment, while also improving financial stability. It’s important to advocate for yourself and seek out opportunities that align with your interests and abilities.


Finally, it’s important to practise self-care and prioritise your physical and mental health. This can include getting enough rest, eating a healthy diet, staying active, and seeking out mental health support if needed. By taking care of yourself, you can better manage the challenges of cerebral palsy and live a full and meaningful life.

This is why at times I don't post. As I feel mentally drained because my CP has caused problems either the night before or days before. And more often than not endometriosis has also interfered


In conclusion, living with cerebral palsy can present challenges, but with the right mindset and support, it is possible to move forward and live a fulfilling life. By focusing on your strengths, building a support network, accessing appropriate treatment and assistive devices, pursuing education and career goals, and prioritising self-care, you can overcome obstacles and achieve your full potential.


For me this is having a fantastic family of my own and my blog here, podcast and books which you can get from Amazon.




As I have said I'm in a bit of a stable place at the moment so I will be pivoting slightly on the blog back towards things I like and do as I had been through different things all mentioned here in previous posts. What have I got planned for now regarding the blog? You will have to find out by reading more.

Sunday, February 26

In Limbo! Waiting for the future



It can be difficult to feel like you are in limbo, not knowing what the future holds. However, try to focus on the present moment and what you can do to make your current situation the best it can be. Remind yourself of the things that bring you joy. And use this time to work on personal growth. The future will come when it is ready and you can use this time to prepare for it.

What does that mean?

It means exactly that! This may mean learning new skills, self development in any way. Sorting out the business you're in, getting the house in order for the next move or anything else that is needed.

For me!

This has meant having the house partially packed up. I kind of hate this situation. However, I am ready for whatever happens next in the sense of the house move because I am waiting for other people to do what they need to do in order to make my next step. That stage will be exciting. ☺️

What have I been doing?


I have been reading all types of books, catching up on TV shows that I have wanted to see and seeing friends. While waiting I have also dealt with some of my medical issues that I do talk about in posts. So that includes the main issue cerebral palsy, endometriosis, general anxiety disorder and clinical depression.

What now?

All I can do right now is wait until I get told what is next. It is frustrating but it is a good way to learn something like patience. And that is something that I have been doing since this has begun.and I will be seeing friends, reading, watching TV series I've not seen and wanted to as well. 

What's next?

Until I know when I am moving I will be working on my self development. This will be regarding my worth, use, patience and more.

So until then that is what is happening with my life with cerebral palsy and endometriosis. And that's ok for me!

Until the next post!

I hope you will read some of my posts and stick around for the next one.

Sunday, December 18

A longer wait than I thought!



Why am I writing now?

The reason I am writing now is because there is a longer waiting period than I had thought or had hoped for. I wanted to explain why I haven't written for such a long time.

What has been happening?

I had thought we would have moved by now but that isn't the case. The local council has very limited housing and because the needs I have the number of homes are reduced even further. This has made things very stressful. I know that it's the right decision even though the timing is off in my opinion.


What's the plan?

For the next 6 - 8 weeks it is a waiting game. The reason is because of where we are now. Most of our stuff is packed up in boxes ready to go. We were to be leaving in late November. However, that did not happen. Then we had thought that maybe mid December like the previous one a couple of years ago but that's not happening either! Now we are not sure when exactly or where. Yet it will be within the next 6-8 weeks. This means that we are where we are for the holiday season. 

Feelings about it!


There's so many different types of feelings going on within me and the family as a whole. The feelings include the following.

  • Anger
  • Frustration 
  • Worry
  • Annoyance
  • Acception 
  • Excitement
  • Happiness

All of these feelings are felt all at once and individually. Throughout the day and sometimes at night. Meaning that I find it difficult to get to sleep.  

All of these feelings are normal, I know. Yet they can really disrupt me.

Why?

This is because they turn my attention to them rather than what I want to do, which is either writing, recording my radio show or spending time with the rest of the family.


The meantime!

During this time I won't be writing much if at all during this time as boxes are everywhere and making me unstable. So I am just sitting, watching TV, reading, listening to podcasts, audiobooks as well as slowly getting ready for the move. And doing lots of self development stuff as the cerebral palsy has many secondary problems. Some of them are mental health issues and others are physical problems that have occurred over time. These include for me the following:

  1. General anxiety disorder.
  2. Clinical depression.
  3. Panic attacks.
  4. Bone damage.
  5. Arthritis.
  6. Post impairment syndrome.
  7. Bone disfigurement.

Some of these have been life long and some of them have been arriving the older I get. These include:

  • Bone disfigurement
  • Arthritis 
  • Post impairment syndrome.


What does this mean?

For me this has meant that with the stress of everything regarding the move has meant that my moods and physical ability has been restricted as I have either been trying to help pack up again or felt so awful that I have not been able to do anything.

What's next?

So while I am staying relatively quiet except on Instagram @sweetestmoonuk where you can find me daily.


Sunday, October 23

More of the same craziness - with moving again!

 Things are a bit difficult at the minute. I'm writing this because of how things are. I'm thinking things through slowly. I've struggled with what's going on recently. We've got a date to move. And It's made it harder to think straight about anything.


We are doing the best we can at the moment as a family, but we're not doing brilliantly. I've wanted to write. I haven't bothered because I've not felt like it. Doing it by audio is the only way I think I'm going to be able to do it for a while and just everything through to make my blog post for now. 


Because of the way, the way messes are at the moment, with getting ready for the move. Which is possibly at the end of November.  I'm looking to get things ready but it's not brilliant. I felt so low with my cerebral palsy and frustrated because I couldn't do things. Which has contributed to my moods and lack of energy to think or even things I love.


Other people are not being as helpful as they could be. So yes, it could be better. It's difficult to do anything else because of the way things are. I want to make things easily doable for me at the moment. Things like having to think about how I'm writing everything through. 


Hopefully, when things are confirmed, I'll be able to do more writing for my blog. So as I have said, I'm using Instagram, having fun with that and trying to be positive. I am waiting for what's out of my control because of the changes with cerebral palsy, along with the things that are going on for the move.


Sunday, September 18

Whoops it's been a while!

It's been a while since I wrote and did anything. Lots of things have been happening around me mentally and physically. I haven't been able to focus.


Lots of things are still going on at the moment. I’m going to have to keep this an explanatory blog post and audio. Because of the way things are at the moment.


I don't know how much longer they will be with all this going on, but I am doing little things through Instagram. You can catch me there. Also the occasional tweet. Those are the two programs that I use the most. You can always get me o

there.


It's been a bit difficult at the moment. I am trying to decide what's most important. I do want to do what I've been doing since 2015. A lot of things have sort of thrown a spanner in the works. And my plans haven't been able to be put into place because of what was going on.


2I'm in the middle of doing one thing that needs to be done right after Christmas time.


We just have to wait and see what happens next and then I want to move forward. Half this year has been rather tangential. I think. It will be for the rest of the year. Though I will tweet, Instagram, and Facebook as much as I can. Things have gotten out of my control. I can't do what I want to do right now. So is frustrating.


My health also hasn't been particularly brilliant, so that has needed to come into play and is more important than anything else.


I've been advertising, the things I've been doing very to a game again. Mainly so you can catch me there. As I said but you're gonna see a lot more of me writing next year.


Please excuse the yawn. It's been rather hot recently, I will get back to you soon.



xxx


Thursday, September 30

Moving on

 Right Now




I'm writing this because I haven't had much to say recently. I changed provider for the blog and life has got in the way.  Using some of the older posts and certainly cerebral palsy has played a lot in my life. And it will for the rest of it. 
Many people think that it is some kind of disease that is contagious. It is not possible to catch brain damage. I talk about it in Life with Diplegic Mixed Cerebral Palsy
Although my case is fairly mild there are so many different aspects of my life that it dictates long term decisions. Not just the short term ones.



For a long time, I have been trying to support myself and my family while doing things that others are doing.
This includes network marketing and multi-level marketing. While living in a place that we have outgrown as a family. I have personally been struggling to cope while living in it. So my health mentally and physically has suffered badly. I decided that I should go back to what I love which is blogging and writing.
What's Next. 
At the moment, we are in a sort of limbo, while we find somewhere that is more suitable for the whole family. And we can't wait for the actual move and start moving on to the future more positive than it has been. 
While We Wait
So while we house hunt I have learned a new hobby and loving it so far as well as learning how to use a new system for my blog. Which is a good thing as I want to educate people.
Have there been any changes? That has meant that you have had to make big changes to your life? 
I'd so love to hear what they are. 
Love and Peace 
Xxx

So Much freedom

 

I can't wait to put out more book reviews. It is so freeing.

Since focusing more on my blog I have been able to focus on more books that are for pleasure.
So although my last review was a self-help book in the post I really enjoyed it. 

I chose the book because there were both aspects of education and pleasure. I think books should be for pleasure but also for learning. I know that when I was at school studying for my GCSEs I hated reading.

I was only reading books that were for my exams and nothing for pleasure.


Again I felt like that while reading business books when I was working in Multi-Level-Marketing or Network Sales.
I know that they were important to read to help me grow as a business owner but I prefer to read for pleasure.


Right now I am in the process of reading a new book to review which will be out soon. Unlike the last book, the book I am reading at the moment is for pleasure.







I like a lot of different genres such as crime, mystery, biography, history and many more. And I love reading different authors and new ones although I have my favourite writers. These include Terry Pratchett, Sir Arthur Conan Doyle and Agatha Christie, just to name a few.


I would love to know who your favourite authors are and see if there is someone I haven’t read yet. Tell me what your favourite book is? And I will see if it is something that I have not read. Then maybe I can read it.
Let me know what you like


Love and Peace

Xxx

Moving Forward: Its Not as Difficult as You Think!

 Things are changing yet again things are in limbo. That's ok and yes Covid19 is still here. That's not ok but we are getting through it.


Unfortunately, some changes have taken effect. For Example, having to wear a mask on buses and on public transport.
These changes have already been taking place particularly in China and Asia. As if people have colds they wear masks out of courtesy for the other people in the towns or villages where they are.

So these things are happening here in the UK. Closer to home things are also moving forward and it is exciting! There has been a bit of stagnation waiting for things moving but that is ok! Moving forward isn't that hard if you try to take each day at a time. I am learning to do this. I have no proper routine as per se because of my disability but that's ok. there however things that I have been doing daily not necessarily at the same time.
  • Watch positive GoalPost videos
  • Listen to the news 
  • Socially say good morning to people
  • Get ready for the day.
  • Say happy birthday to people online.
  • Watch a few episodes of my favourite tv shows while brainstorming in my own head.
  • Take a couple of social photos ready for my social media.
  • Read a book that I'm interested in
And I am ok with that because I know at least it's being done. I know I did a post on Being trapped in the house about time blocking for routines and I know I have written other posts about this too and I learned that because of my disability my time blocking is different to most people and it is up to you how you actually do it. 
Remember there are things are changing but try to stay positive. Blocking my time has really helped even though there has been a lot of challenges throughout there are difficulties because of the virus. Love and Peace  Xxx

Moving forward! a different way for me!

 I'm writing this by using my voice as it seems to be quicker so that I can get more written up in a short of time for what I want to talk about because of my disability and my feelings of depression.



This post is just going to be about how I've been feeling properly over the last couple of months I wanted to make sure that the disabled people were being noticed generally in the public eye not just hidden away and ignored because of problems. Not astigmatism in the sense of people. However, it is not working so well talking about how the way I feel because of the way things have been regarding my disability and frustrations and I know that life will change in the future.
but I don't want to I want to be as normal as possible and it's not always possible to.

I know that I have a limited time with the ability to walk, that's not much longer and will end up in a wheelchair. which is not what I want, but it is what will happen if I'm not careful.


So l when I decided to write this out today. I decided that I’d rather do it quickly via voice typing rather than type exactly what I'm saying until I've finished what I wanted to talk about.

Because I wanted to
mentioned in another post and that is my day-to-day feelings of depression blog. it's not nice all the time. it has a positive side of things because I can write more often, quickly and that I have no criticisms from the other people who I would generally consider as high-end bloggers. however much I would like to do it as a job and just what I'm trying to do I'm not doing it in the considered normal way because of my disability abilities and so there are days I do and there are days when I want to just curl up and not do anything. I would rather than not do anything I've decided to a daily blog on Tumblr. And put my actual thoughts out. Whereas this is just going to be a summary of what has been going on because this is something I haven't thought was viable for this website. Because it's not saying everything but maybe I should do more about that, or not, I haven't got a clue. I will be going to this in more detail possibly in more posts. other than I am going to start typing out this way because it's a lot easier for me than spending hours every day typing up. I can just think about what is being said and added directly into my post before editing it and getting ready to be posted and up on the site. it also means that I will be able to deal less. Because I can say what I want and not just type what I'm thinking using complicated words and using less complicated words so much I would do and pass it through and edit it making sure that it's for people who understand what I'm talking about and having complex needs with my cerebral palsy. I have made it very difficult at times to write and say anything in the actual blog without feeling awful.

So this is another way of doing it yet quickly. Doing short posts on Tumblr seme easier than the other way for me.

The conditions I have got with the condition is clinical depression, g a d which is, general anxiety disorder, endometriosis and arthritis. A lot of the time I'm I'm not feeling like I can say anything positive about my disability. it's this frustrating me it's making me feel like I can't do anything and I began to post today on my Tumblr post log because of the way I was feeling and it can be quickly written. And this can't be. Because it needs to be formatted in a way that people can understand what I'm talking about. I'm learning to collaborate because it is making it easier. I will put it in a section for the website so that it can be got at privately by someone if they want to read this one rather than outright public I want to give us much as I can for free about disability yet I want to be able to earn a little bit. I again do that to improve my podcast, my vlogs once a week and my blog.

I have been testing it, seeing how much I can get written up rather than typing. It does make it a lot more easily use for me to do. I will be thinking about typing this quickly each day and putting more out by this way and if I don't use Google, directly for it then I will be using otter.ai which is another format for my website. That I use when I do the vlogs, audio for my podcast, before the written version which I put on my blog.

So far though this has been the best way to get what I want to say rather than typing. Because I'm able to keep up with what I'm thinking rather than having to stop and type everything. Mentally it is a freer way of saying something rather than having to type and it makes it a lot easier for me and the less stressful, mental deadline for each post I write.

A New Season ahead

Welcome to a new season of Life with Sweetestmoondust. And sorry for being away for such a long time. There has been so much going on for ...