How are you dealing with the world right now?
Thursday, September 30
This has been one of the most hideous years ever for almost everyone in the world. The worst I can think of was a century ago when the Spanish flu killed 50 million people worldwide.
Now the world has changed because of this new virus. The number of changes that have altered the environment and social actions of people because of Covid19.
Everyone is struggling in some way some are even rebelling. These situations are scary for everyone understandably but we need to stand together. It will get easier with time and resources but these again will take time to find a vaccine or cure
How are you dealing with the situation at home or work?
There has been some kind of stagnation, which in a way has been a good thing. It has made people breathe and realise what is important both emotionally and physically. Yet others just don't care or don't believe what is going. Because they think it's a hoax but it's not.
It is ok you are not alone!!
I have had so much downtime because of what's been going on and have not felt like writing very much. It has certainly made things difficult because of the space where I am as well as emotionally.
It is super crowded especially as there are four of us in the place. Which is a tiny Victorian townhouse with incredibly steep stairs that I find hard to walk! I feel trapped at times here at the moment. So feel low at times and I am sure you do too at times in your own home? You can always contact me.
Don't worry too much about things I'm the same!
However, as facets of the world is gradually going back to some kind of normal with some modifications like the use of masks and hand sanitiser when out in public places like shops or using public transport.
Things are moving extremely gradually towards the future. I am kind of excited about it but wish it would hurry up. Because I would feel more confident in a place which suits me better. But you know what we are all in this together. And that is important to realise, we are all touched in some way or another.
Please don't forget to contact me if you are feeling low.
love and peace
Are you curious about why some people shake but don't have the condition Parkinson's?
Do you see people sitting in a wheelchair every now and then shaking? And wonder why?🤔
Are you a parent of a child with either the occasional shake on their limbs or are they constantly shaking? Or do they have stiff movements?
I can give you some insight. As I have the condition as mentioned in Life with Diplegic Mixed Cerebral Palsy. But in this post, I am specifically talking about the Spastic type. 🦽
What are the symptoms of spastic cerebral palsy?
Primary symptoms of spastic cerebral palsy include muscle tightness, or increased tone, leading to stiff movements and difficulty executing precise motor control. When upper limbs are involved, flexion (Tightness) is seen at the elbow, wrist and fingers.
There are various degrees of this. I'm fortunate to have a fairly mild case. It can be in any type of cerebral palsy such as diplegic, one limb or quadriplegic. It also can be combined with other types of cerebral palsy making it a mixed This type of cerebral palsy is one of the most common forms of cerebral palsy but it does not mean that the person with it is not able to talk or whatever, it just means that their movements are laboured and jerky. Depending on where it is it means that walking is harder or eating due to the movements in the arms. If the case is in the lower extremities, then it is very common to see the person in a wheelchair.
This does not mean that the person is unable to do anything at all. It means that things need a different way of thinking. The same needs to be done when the case is in the arms or as a quadriplegic. There are so many things that can be done to support the person with this type of cerebral palsy.
I will show different options to aid the person with independence. To make the person as independent as possible. These will be gone into detail in other posts but the following is a list of what is generally known
- Physical therapy
- Behavioural Therapy
- Medication to control spasms/seizures
Physical therapy is the most important form because this means that the person having the best type of exercise for them. Unfortunately, it is not always possible to have it consistently. Many are only having blocks of 6 weeks of sessions then end up stagnating in their stiffness and often get worse.
Behavioural Therapy is the second most important form as this is the way the person learns how to do things so this is the most important form to start as early as possible in the persons' life as this teaches them how they can be as independent as possible. This includes getting dressed, feeding, cooking and everything else the average person takes for granted.
Medication is another thing that is given and many different types are to be suggested and advised by the doctors who are involved for the particular patient. And these are to aid against the constant spasms. As well as the pain that is in conjunction with the spasms. Which is sometimes connected with epilepsy and other seizure conditions.
Surgery is another option that is often used as a last resort because of the pain and positioning of limbs and smaller joints. Which means that the joints are fused. Therefore limiting movement further.
So each thing is to be done according to the patients' case as everyone is as individual as the person involved. Sometimes some options don't sound possible but actually are. The most common version of this is an injection of botox. Most people think of botox and the beauty side of the injections into the facial muscles making it impossible to frown at times. But the injection can actually relax the muscles making the movement easier to do.
These help the person live a more independent life to the fullest of their capabilities. Meaning that they have the same right as anyone else.
In my personal case, my joints can be held tightly with some differences to the average person.
As you see I hold one of my hands differently while drinking
It doesn't mean that I can't do things it just means that I do things differently and I don't let the condition get in my way. Because everyone is different and that is how we are meant to be.
Love and Peace
Further to my post What is in a cup of coffee any way I wrote about what I thought about coffee and what was my favourite type.
And although I did mention some of the benefits that coffee I did not mention all of them. I was contacted by #GerardPaul from #ManyEats in which he mentions many more. So in conjunction, I would like to add his amazing article Health Effects of Coffee which has more information. Although opposing to my own views on points. I would be foolish not to recommend reading it. So although this is a short post, I wanted to add more information. And since my previous post was a year ago on my original blog and rather than just edit my post I thought I would write a completely new post.
Love and Peace
We are all having to deal with these life changes because of COVID 19. You know what though, this is the time to make these small changes in your own lives. What changes do you think you need to do? Organising timekeeping, routine making, self-care, mentally and physically, just to name a few. Well, this is the perfect time to do these things. If you haven't started it doesn't matter.
Now is perfect to do what you haven't done but have meant to.
You may also want to pick a new skill. So stop procrastinating and do it! Life is too short to not do what you need for yourself. There are so many places online that can you get free information and lessons on whatever you want to learn to do or get better at. these places include youtube, books, or ebooks. Have you got a kindle? Here's a link to get one if you haven't already Kindle E-reader What about trying to help yourself with your mental health. My favourite books to do this are How to be nice to yourself, Happy, and You are Baddass. For time keeping my favourite book is Time is Money. At the moment I'm reading The makeup of a confident woman which is about doing your makeup in a limited time and how important it is to do it for your own self well being.
As I said this is a difficult time for things and there are lots of things that are actually changing socially. And some of these are challenging for us as being social but as a disabled person, I am in the house permanently until the lockdown was eased and I am preparing to move home so getting ready to do so. I have mentioned this in one of the biggest stresses.
So I completely understand where everyone is going coming from. Love and Peace
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