Showing posts with label cerebral palsy. Show all posts
Showing posts with label cerebral palsy. Show all posts

Sunday, March 13

Autumn and its Affects on the Body with CP




 What do I mean?


As with every type of cerebral palsy, there's so much to think about. There are 4 main types which I have mentioned in the following posts Life with Diplegic Mixed Cerebral Palsy Common Questions for me Challenges ahead Part 1and Challenges ahead Part 2. But it doesn’t matter what you want to be able to do it can also depend on how your body reacts to stimuli such as the weather. So that means the seasons affect the body daily as well as the season as a whole.


So what?


I am picking autumn because here in the northern hemisphere have just gone through autumn and currently going through winter before the next seasonal change with spring on the way. But not here yet.

  

Ok, what happens?


Each day can be different as the weather is. But there are generalisations and these are as follow because it also depends on how you slept the night before. again this depends on where you are living. Because if you are living in say sheltered accommodation where you cant regulate the temperature of the building let alone your own room.


Warm Days:





These days are my favourite ones as I can be almost free to be and do anything that my body actually can do. And it's just not my particular type of cerebral palsy that finds these are the best but again this depends on where you are living.



Wet Days:





These are the days that are in some respects the worst as it means that we can’t necessarily go out. If it's just a little bit of rain and we as a type of person can walk a little it depends on how wet the ground is as it is uneven and slippery because of the wetness already on the ground. Yet if it has been raining and you are in a wheelchair, self-propelled or motorised you are also dependent on how good your chair is. Because you have to judge what is an urgent event or not. As this can affect the wheelchair.



Windy Days:





These days are in some respects the worse because the wind will make you feel cold. As the wind can get everywhere around you even if you have a blanket over your knees. While you are in a wheelchair. If you can walk then it makes it harder to move as the buffering can cause you to fall. So a walking aid such as a walking frame can be a double-edged sword. I say that because it depends on the type of cerebral palsy you have. As well as how severe it is. Because the frame may make it harder for you to walk but again that depends on what type of walking aid you have. A walking stick may be helpful to a certain extent too yet that may not be as stable as a walking frame. However, this also depends on how you walk gait wise.


Cold Days:





These are also the worst types of days as well as windy days because of the way that the cold affects the muscles and joints on a day to day basis and it doesn't matter what type of cp you have.



Sunday, March 6

The Seasons and How They Affect The Body With CP

 


What do I mean!


In the next series of posts, I am going to be going through the ways how the seasons affect the way cp affects the body on seasonal and weather types. This will include the way the affects the muscles and moods.


The following is brief outlines of each post. That will be up weekly.


Winter:





This is a particularly hard season, for many of us with cerebral palsy. As its weather and temperatures affect us quite severely. I will be discussing these in the next post. Which is out next week.


Spring:





This post is about the way this seasons weather and temperature affect us.


Summer:





Again this post is about how the season in all its types and how it affects the body when it has cerebral palsy.



Autumn:





This will be the final post about how the affects the body with cerebral palsy in the series although I have posted about the way ages affect the body with cerebral palsy. These areas follow:



And in this following series that starts with the following  about Depression and Cerebral Palsy


Final comments:


I hope you enjoy these posts.












Sunday, February 6

Cp Depression and your 40s

You're in your 40s and cp are throwing spanners in the works:




Ok, so you notice things are getting harder and you are more and more frustrated. I get it. I’m going through this stage of life right now and get what you are going through. 


What happened for me to begin with


Life was pretty good to start with. The kids were off to school and I was in control of what was happening around me. Yet I could tell that things were going wrong within me. Not chemically but physically. It was the little things that I was losing control of, such as putting my shoes and socks on or crossing my legs at the knee.


Those Feelings kicked in again!


As I mentioned in previous posts such as The feelings of frustration, and despair because of the way things are with my body I felt that I was losing control of everything around me. This included the feeling of not being a good mum because of the inability of being able to do something that I perceive that the average mum can do. And some of the things that I couldn’t do. Sometimes it is frustrating that the children wouldn’t do the chores that I asked them to do. And they were chores I can’t do anymore. You may say what about asking your partner to help. Yes, I did and do but just sometimes it is the feeling of loss of independence. It can be the realisation that says in 10years time the brain damage that is consistent changes something else that you thought you wouldn’t necessarily lose but lose anyway.



What I did


I did what most mums would do which was to nag the kids to help but this didn’t work. Because as the kids got older they became more and more independent and didn’t want and still don’t as I write this. But I have to realise they are teens right now and don’t want to do anything that their parent wants them to do. And that is normal! 



How I counteract those feelings:


When I first noticed that things were going awry I said to my hubby I thought I needed to go back on medications and so I went back to my doctor and went back on medication. And I’m not sure if I will ever come off them as anything can trigger an episode. And when I have been off them by mistake I acted like a completely wild animal with my anger and frustration. My kids have politely asked me to never come off them.


I also got another case of counselling and in this round, I had CBT (Cognitive Behavioural Therapy). Which I do use almost daily. Because there are things that can trigger an event that causes that to arrive. But that is diminishing slowly.


Final words

So I have said what I used to help myself in my moods in this post and the posts before I mention the different types of ways of getting help for yourself as an adult and to aid children who have cerebral palsy to learn how to deal with their condition as they get older.


But it is up to you how you help yourself or the person you care for.


Sunday, January 30

CP and depression in your 30s

So the 30s have hit and you’re feeling low again:




So looking at what you have and the thought of why you. And the feeling of being a burden is another problem because you are not able to do things that the people who you live with can. 


Remember that these are also issues that occurred when you were a child, teen and in your 20s 



Ok, the feeling is there again!





This is when you are going through another bout of depression because of the feelings. But you are not alone. There are lots of people who are in the same box.


What to do?


Ok so the feelings are there and you've been given all the cues to get the help in your 20s. Now is the time to use them again. 


If on the other hand, you're reading this post then it's ok. I've been through the same things and didn't know anything until I was in my 30s 



What I did!


It was at this age I finally started getting the help I needed.


I was diagnosed with clinical depression at this point. So I was put on medication. I also went through a course of counselling. For a long time, I managed to be content enough and came off the medication. 



When my family grew and my children were eventually off to school I noticed that my body has started to get a bit more worn. Slowly I also noticed that I was getting more and more tired. However, I ignored all the warning signs and carried on and let life take over.


In that sense, I should not have left myself got at this point but I did. For some of the stuff I was dealing with I got healing thanks to the counselling but there were things I was dealing with and didn’t know.


If you have those sorts of feelings realise that everyone has these and it doesn’t matter if you have a disability or not.


Last words


My thoughts are if you have not got the help you need then push for it but if you have it then use it. There are so many apps as well that can help you. But not everyone is the same so it is best to search on your phone and try as many as possible till you find the ones that work for you.






Sunday, January 23

Young adults with cerebral Palsy and depression

So they're 20+ with cp:



Ok so now any help that social services and the medical professionals seemingly wash their hands of the new adult who is beginning their adulthood. I say that in the sense that the professionals don't really know what cerebral palsy does to an adult.


So what do you do now?





If you have gone through difficult times as a child with cerebral palsy and they are feeling low because of what the condition is throwing up even daily. This could be tiredness, muscle tone and pain, or anything else that cp has given you. Then go back to the people who were there for you as a teen helped you with the mental health issues that come across from time to time. These may be:


  • Councillor

  • Friends

  • Family

  • Work colleagues.

  • GP

  • Social services 


One of the main feelings:


At this point the question of why me? probably is the biggest question you may ask yourself even though you may know the reason. Emotional frustration because of what your body throws at you emotionally is the main cause of depression. So keep this in check and anything else that causes stress and anxiety.


Will you have a partner?


This is another question that may trigger depression and anxiety. The thing is this is a question that even able-bodied people have to. So it's a normal question for everyone.


The frustration of the cp:


This is a common cause of depression so going to your GP for help is the 1st big step as much as it's the sensation of depression and anxiety because of what cp has given you. But also remember no one is the same. If we were, it would be boring.


The future?


That totally depends on you and how you deal with things.


Sunday, January 16

Teens, cp and depression

School and teenage life with cerebral palsy:



Like every child and adult, they may go through bullying. Which is horrendous in any case having a disability on top of that can make things even worse. It doesn't matter what type of school the child is at either. 


Listening to the Teen:


This is the most important thing that should come from the parents, friends, family, and professionals that are involved with the child. because it is their lives that you're looking out for as an adult in their lives.


At school:


When the child is at school and if they are being bullied. then the first port of call is to get it dealt with within the school itself. But again if it is not resolved you will need to go higher in the system.


At home:


If at home the child is unhappy and depressed. 


  1. Talk to the teen

  2. Listen to the teen

  3. Don't ignore them or brush off what they are saying or going through.

  4. Point them in the direction for help

  5. Emotionally support them

And just generally support them.


Some of the places to guide them include

  • Childline

  • Social services

  • GP

  • Consultant

  • Friend

  • Adult

  • Teacher

  • Councillor

  • Facebook groups

  • Local groups if there any nearby


Dealing with the cp specifically:


When the teen asks about their condition and why they are different because of whatever evidence the cp has thrown up. Remember the following


  • Treat them as you would any other teen

  • Explain as simply as possible that it's not their fault.

  • Give them time to process the information

  • Support them in whatever way they need

  • Get them to ask the consultant relative questions


Then you can help them move forward and by getting support from other places such as the list below:


  • local groups

  • Scope

  • Facebook groups

  • Councillor

  • Friends


These things might be common sense but sometimes these need to be reminded because they are all intensive purposes the same as any other teen but have added issues that may not be disclosed at the moment through the cp but may show up later in life.


What if the teen is nonverbal:


Ok, the teen is nonverbal due to the cp mainly in their facial muscles. Then get them to talk via their equipment. It shouldn't matter how long it takes for them to get their own message, dreams, whatever across and using their equipment gets them to open up. 


Listen to what they have to say. 


Because I can tell you from personal experience that they want to be heard and treated equally in their own lives. Cerebral Palsy does not mean that we are not capable of doing things. It means it has to be done our way. It doesn't mean that they can't use their brains. It means they are wired differently. Just the same as anyone who has any other disability.



What does this mean?


It means that they are valued. Their opinions are presented equally. They are heard as a person not just as a disability. This way they are the person who has cerebral palsy, not the person who has Cerebral Palsy.


Sunday, January 2

Depression and cerebral palsy

Is Depression and Cerebral Palsy Connected?



That is a question that a lot of people have. It is also a valid one because of the limitations that cerebral palsy causes within the body and the frustration that comes along with it. It doesn't matter what age of the person with the condition there is always going to be times in their own lives when frustration kicks in.



Depression and children with cerebral palsy:


As a child with cerebral palsy, it is going to be harder for them to communicate what is wrong. It may be because they are different from their classmates. That, either they distance themselves to let the others shine. Or they can be bullied. Which is equally wrong. It's also when the parents or family members either expect the child to do the same as other members without taking into account the issues that the child may have. Or won't let them do what they are capable of by smothering. Therefore they are unable


CP Teens and Depression:





This is when things start to spin if things are not gone unnoticed. Because hormones come into play on top of the normal things going on. Such as school, family stresses and strains, their points of reality when they fully understand what cerebral palsy means for them and their future. So it's worth keeping an eye on what they are feeling and listening to them.



CP  20s with depression:





This is really when things are difficult as when they are working if it is possible because quite often the place of work does not understand the persons' limitations. So if you are working then keep an eye on your mental health. Or if you know of someone who has cp ensure that they are mentally ok.


Cp 30s with depression:





Another decade has moved on and your body has started changing yet again meaning that the frustration again kicks off because you may notice the changes in the way things are done. So this is when the body starts to wear out but not completely noticeable both for the person and friends and families.


CP 40s+ with depression:


It is at this point in life that the changes were beginning a decade. They are becoming more and more noticeable. Which will make the frustration more evident. Therefore it is when depression can be strong in the person's life. So make sure you keep it in check.



Final thoughts:


In conclusion, there is every chance that there will be a depressive episode. At some point in the person's life. However, this is dependent on the person's personal attitude towards life as a whole. And is not always going to be there.


Sunday, December 26

Moving forward with Cp






Ok so you have a child with Cp:


Or you are a young person with the condition. There will be lots of people who are older than you. These people have the best intention in the world and yet get things wrong particularly about your condition. These people may be members of your family but don’t understand the condition. They may think they don’t. You must realise this.


Comments they make:


  • Close your legs.

  • Come on hurry up!

  • You can do better than that!

  • Pick your feet up.

  • Stand still.


These are just some of the ones I have encountered growing up. Even now decades later these confuse me.

You may wonder why I say that. You’ll see.


Growing up and feeling out of place!


Whether you are a single child/part of a bigger family that you live with. You are a member of the family who is reading this with another member with cerebral palsy. Take in mind what is said as it does not matter what people say. There is always a sense of being out of place because we are not classed as normal. There are signs of it in every part of life. This includes clothes, looks, dreams, work, movies,  how we eat and drink, how we speak. But the thing is we are the same as everyone else but parts of our body don’t work the way we want. That can be a real pain sometimes. I want to make sure that everyone understands that it is not always easy to do, what is expected of them because it is not part of their dream. it could be completely different to what is expected. 


What is normal?




What is the question of being normal? Because being normal mean nothing? As a human being. I would have thought being able to give some purpose to the world and each other was better than not being able to do anything or being criticised. Some people who think that being different is not ok are wrong. Wanting to be normal is is a perception and that means being yourself is not acceptable. There are options to be sure to show that being yourself is better than being what everyone else wants. Because it proves that you are what you are meant to be no matter what.   the whole system of being normal is also being portrayed too much on TV  and film because there are not people enough people should I say who are betraying people who are different and this is where the perception becomes the norm.


Growing up!





Personally, I had very much the perception of wanting to be normal but then questioning that whole thing because I was on my own a lot. I watched a lot of TV and films where sexism and racism were the norms and it is not in my eyes until I was older that it made me question myself because  I am different because of cerebral palsy. Growing up despite being an only child and was treated no different than everyone around me. I found it incredibly difficult because I thought I was normal and was able to do stuff but later found that actually, I couldn't. And that made things very difficult and depressive for me because of the feeling of inadequacy.


Trying to be a people pleaser and follow their example makes it very hard on yourself and I have learnt this myself. Now shows that actually being yourself is stronger than r following the Sheep in human Society as a whole. Although at times of medical interventions such as the pandemic right now it is best to follow the guidelines. however, it does not stop you from being yourself within the confines of society.


Teaching people that being different is ok!


Being yourself and showing that being different is out is ok and good for the environment and for Humanity shows that equality in the human race can be done. It may sound stupid but there are still people who perceive that different is not ok and it makes it harder for those of us who want our own dreams and goals to be heard very hard to actually be heard to get what we want within our life.


What next?


What Next? is the question that should be on everyone's mind right now but in every situation. However, cerebral palsy and other disabilities need to be shown that they are accepted and we are valued because whatever is said meant by family members and others make us feel that we're not. So what is next? They might even try and say that but they're trying to help but actually, they're not! The best thing for you to do is firmly but politely say sorry I can't do that. Because the more people learn about the condition and other conditions will be able to be more accepting of other people.


Final thoughts



My final thoughts on this would be to educate people and educate people continually until it is done. however, I don't think it will be at least in my time but hopefully, in my family's next generation. There is such a long way to go to make equality for everybody on this planet.




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